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Public Policy

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Benefits And Rights For Individuals With Dementia And Their Families
FREQUENTLY ASKED QUESTIONS
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How do I register to vote?

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Who are my elected officials?

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How do I contact my elected official?

HOW DO I REGISTER TO VOTE?

WHY?

Every vote makes a difference.  Voting allows you to voice your opinion on important issues through your choice of the candidate most reflective of your ideals.  Your letters, faxes, phone calls, etc. also have greater influence over your elected representative if they can see you are a registered voter.

To register in Pennsylvania, you must meet these requirements:

  • Be 18 years old by election day

  • Be a US citizen for at least one month before the election

  • Have lived in your election district for at least 30 days before the election day.

WHEN?

Voter registration closes 30 days before each election to allow all the new registrations to be recorded. So register NOW while you are thinking of it.

WHERE?

Mail in form
You may obtain a mail in form from:

You need to register if:

  • You have moved, or

  • You want to change your party affiliation, or

  • There is a mix-up in your registration and you needed a court order to vote in the last election

You should re-register if:

  • You have changed your name 

  • You changed your address but still live in the same election district.

You may also register in person at many government offices including:

  • The county Voter Registration Office

  • PennDot: with your application for a motor vehicle driver's license

  • Other state offices such as: public assistance offices, Marriage License Bureaus, Orphan's Court, armed forces recruitment centers.

You stay registered even if you haven't voted recently. An elector may not be removed from the registration rolls except:

  • By request of the elector.

  • Upon death of the elector.

  • Upon confirmation that he has moved outside the county.

  • Upon determination of a valid voter removal program.

If you will be out of the county or unable to go to the polls on Election Day, you will need an Absentee Ballot.

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WHO ARE MY ELECTED OFFICIALS?

Please visit the Government Guide: http://mygov.governmentguide.com/mygov/index.html

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HOW DO I CONTACT MY ELECTED OFFICIAL?

Write a Letter
Legislators are apt to respond to the needs and requests of their own constituents.  Hence your feedback is important to them in the decision making process.  Make your voices heard and speak for those who need our help . . .

Tips on writing letters to elected officials

Guide to Writing Letters to Elected Officials:

Pennsylvania House of Representatives

Date 

The Honorable (insert full name, ex. John Smith)

House Box 202020 (all Representatives have same House Box number)

Main Capitol Building

Harrisburg, PA 17120 

Dear Representative (insert last name only):

 

Pennsylvania Senate

Date

The Honorable (insert full name, ex. John Smith)

Senate Box (insert Senate Box number, which can be found on the Elected Officials page)

Main Capital Building

Harrisburg, PA 17120

Dear Senator (insert last name only):

FOR DISTRICT/ COUNTY ADDRESSES (see Elected Officials Page) 

FOR UNITED STATES SENATE AND CONGRESS:

The Honorable (full name)

United States Senate

Washington D.C. 20510

 

The Honorable (full name)

United States House of Representatives

Washington D.C. 20515

Tips for letter content:

  • Personal letters are more effective than ‘form’ letters.
  • Identify yourself as a constituent, or friend of the Alzheimer's Association.
  • Focus on one issue; write a separate letter for each issue of concern; keep letters to one to two pages for convenience.
  • The public policy issue of concern for you should be stated in the first paragraph; be sure to emphasize the need for your representative to pay attention to this issue.
  • Give reasons for your interest in this issue that are individual and unique to your situation; ie how this issue effects you and your family, and any personal experiences.
  • Maintain politeness; avoid name-calling, sarcasm, etc.
  • Remember to put your complete return address on the letter itself as well as the envelope.
  • Write your letter to all candidates for office, representatives, senators, that represent your constituency.  The more letters you send, the more effectiveness your plea will have. 

Schedule a Meeting
Clearly the most powerful tool of communication is face-to-face, however, scheduling an appointment may take some time, even as long as a month.  Don’t let this discourage you, be diligent and your elected official will find time to meet with you!
 

Place a Call
When time is of the essence or you are unable to write or meet with your elected official, making a phone call can be just as effective.  If the legislator is unable to speak with you, rest assured that his/her staff would relay the message to him/her.  

Remember they are concerned with receiving your vote and as a constituent you can have a powerful impact.

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THE AREA AGENCIES ON AGING (AAA’S)

The Area Agencies on Aging (AAA) are the local representatives of the Pennsylvania Department of Aging that offer various programs for older Pennsylvanians. The AAAs act as advocates to keep Pennsylvania's older citizens active and independent in their own communities.

There are 52 such offices, serving all 67 counties. They are staffed with caseworkers skilled in such areas as geriatrics, social work and community resources. They can assist you with questions regarding nursing facilities, community services in nursing facility placement, and a wide range of other community services tailored to your specific needs.

Click here to find the Area Agency on Aging that serves your county.

If you know the zip code but not the county, please use either the Zip Code Search  or City Search option to locate your local AAA.

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PROTECTIVE SERVICES

Adult Protective Services

In the Protective Services program there are two types of reporting - voluntary and mandatory.  

Voluntary Reporting

  • Any person who believes that an older adult is being abused, neglected, exploited or abandoned may file a report 24 hours a day with any Area Agency on Aging  or call the statewide elder abuse hotline at 1-800-490-8505.

  • Abuse reports can be made on behalf of an older adult whether the person lives in the community or in a care facility such as a nursing home, personal care home, hospital, etc.

  • Reporters may remain anonymous.

  • Reporters have legal protection from retaliation, discrimination and civil or criminal prosecution.

Mandatory Reporting

  • Employees and administrators of nursing homes, personal care homes, domiciliary care homes, adult day care centers and home health care are mandated by Act 13 of 1997 to immediately report any suspected abuse of a recipient of care to the Area Agency on Aging. If the abuse involves serious injury, sexual abuse or suspicious death, reporters must also call police and the Pennsylvania Department of Aging at (717) 783-6207. In addition, the reporter may also call the Pennsylvania Department of Health Nursing Home Complaint Line at 1-800-254-5164.

  • Failure to report as required by Act 13-1997 can result in administrative or criminal penalties.

Ombudsman Program

The Department of Aging administers the Ombudsman Program statewide for consumers 60 years of age or older through contracts with each of the 52 Area Agencies on Aging (AAA) in Pennsylvania.

Ombudsmen respond to complaints from the older consumers of any long-term care service provided in an institution, a community setting, or the private home.

The Ombudsman Program is unlike any other long-term care service, for its sole purpose is to support and empower consumers. An advocacy role takes two forms: 1) to receive and help resolve individual complaints and issues by or on behalf of consumers of long-term care services, and 2) to improve and enhance the long-term care system, its laws, regulations, policies, and administration through public education and empowerment.

The Ombudsman Program:

  • Must follow-up on all received complaints

  • Must obtain consent from the consumer/complainant before proceeding with the investigation

  • Must provide Tier Two training to each local Ombudsman prior to allowing the Ombudsman to investigate a complaint

  • Must refer to the appropriate agency all complaints that allege abuse, neglect, or financial exploitation

  • May enter a facility at any time as necessary to advocate on behalf of a resident

  • Must ensure confidentiality of information and records

  • Must not release the identity of the older person and the complainant without consent or court order

  • Must work with all parties such as facility staff, family members, and regulatory agencies in seeking a resolution to verified complaints

  • Must work with licensing agencies for effective enforcement, as ombudsmen do not have authority to require action by a facility or other providers of long-term care.

Responsibilities of the State Long-Term Care Ombudsman:

  • To design, implement, and manage a statewide uniform reporting and investigative system for complaints made by or on behalf of older consumers of long-term care services.

  • To establish policies and procedures for implementation of the Ombudsman Program and to ensure compliance with all federal and state requirements.

  • To analyze and monitor federal and state legislation that has an impact on consumers of long-term care services.

  • To train representatives who provide local Ombudsmen services.

  • To provide technical assistance and information to local Ombudsmen and consumers of long-term care services.

  • To monitor local program implementation to ensure compliance with standards and enhance program performance.

  • To address concerns common to all older consumers of long-term care services by advocating at a systems level.

  • To work within the legislative and rule-making process to improve long-term care services throughout the state.

The Office of the State Long-Term Care Ombudsman can be reached at:

Pennsylvania Department of Aging
Office of the State Long-Term Care Ombudsman
555 Walnut Street, 5th floor
Harrisburg, Pa.
17101-1919
(717) 783-7247
Email - [email protected]

Local Ombudsman Listing

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HOME AND COMMUNITY BASED CARE

There are programs that provide services to older Pennsylvanians so they can remain in their own homes and live independently for as long possible.  These programs are administered by the Department of Aging through the local Area Agencies on Aging.  Contact your local Area Agency on Aging  or click on any of the following links to learn more about these programs.

Senior Community Centers  

Statewide, over 650 full and part time Senior Community Centers offer people age 60 and older, and their spouses, a place to go for nutritious meals, social activities, and a range of programs such as health screenings, health and consumer education, creative arts, exercise, and other special events that are unique to individual centers. Senior Community Centers often work with a variety of local organizations, and provide access to other community services as well. Centers also offer volunteer opportunities where older people can contribute their experience and skills in meaningful and satisfying ways.

Of the 650 Senior Community Centers approximately 100 are known as "satellite" centers where people age 60 and over, and their spouses, can get together, socialize, and enjoy group dining. For information about the Senior Community Center in your area, contact the Area Agency on Aging serving your county, or visit the website of the Pennsylvania Senior Centers at www.paseniorcenters.org. This website provides Pennsylvania's senior community centers with opportunities to exchange information and ideas on topics of vital interest, and is designed to provide senior community center participants with timely and useful information. A listing of senior centers in each county 

Home Repair & Modifications

Many older persons own their own homes and want to stay in their home and community. Sometimes, however, medical and other expenses make it difficult to maintain the home or to pay for needed repairs. Although Pennsylvania does not have a state-funded home repair program, local programs are often available. Contact your Area Agency on Aging to find out about programs in your area.

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INSTITUTIONAL CARE

Domicillary Care Services  for Adults
Domiciliary care is a supervised living arrangement in a home-like environment for adults who are unable to live alone because of demonstrated difficulties: (1) in accomplishing activities of daily living; (2) in social or personal adjustment; or (3) resulting from disabilities. The Area Agency on Aging is responsible for assessment and placement of residents in domiciliary care homes. They also certify domiciliary care homes. Residents are eligible for a domiciliary care supplement payment if they are eligible for Supplemental Security Income (SSI) or have an income less than the combined federal/state payment for domiciliary care and are not related to the provider. People who are not eligible for the supplement may reside in domiciliary care homes as private pay residents.
 

Personal Care Homes
Personal care homes, sometimes called assisted living facilities, offer room and board and assistance with the activities of daily living (such as bathing, grooming, and meal preparation). They are inspected and licensed by the Department of Public Welfare. Older people or their families who are thinking about moving to a personal care home, should consider only those homes with a current license from the Department of Public Welfare a listing can be found at http://www.dpw.state.pa.us/osp/osppchfod.asp  It is also important to have a contract with the home operator that lists the services to be provided and the cost of each service.

CONTACT: To obtain a copy of the current regulations or a current listing of licensed personal care homes:

Division of Personal Care Homes
Department of Public Welfare
P.O. Box 2675
Harrisburg, PA
17105
(717) 783-8391
 

Nursing Facilities
There are approximately 635 nursing facilities located throughout the state. These facilities provide physician-ordered medical services and supervised nursing care on a 24 hour basis, in addition to and above the level of room and board, for persons who do not require hospitalization, but whose needs are such that they can only be met in a long-term care facility on an inpatient basis. 

NOTE: Basic daily care costs are reimbursed for persons certified for Medicaid. Medicaid patients also receive a personal allowance, included in the monthly reimbursements to the care facility, which may be used as they wish. Medicare may also pay for limited coverage. Persons clinically eligible for nursing facility care can also be served with home and community-based services through the OPTIONS program if they meet program criteria. 

It is possible for some consumers who are eligible for care provided in nursing facilities to be served in their own homes in the community. More information can be found in home and community based services:

OPTIONS Program

60+ Aging Waiver Program 

Continuing Care Communities
 Pennsylvania is a leader in the continuing care (life care) industry, offering over 120 CCRCs from which to choose.  A continuing care retirement community offers independent living, usually in an apartment or cottage, and access to a higher level of care such as personal care or nursing facility.  Residents move between levels of care as their needs change.  Services, such as meals, medical care, social and recreational activities are provided through a contractual arrangement for the lifetime of the resident.  Residents usually pay an entrance fee and a monthly charge.  Continuing care communities are licensed by the Pennsylvania Department of Insurance.  Visit Choosing a Continuing Care Community on their website for more information. 

To request a copy of the "Directory of Licensed Continuing Care Communities in Pennsylvania" contact: 

Pennsylvania Insurance Department

Press Office

1326 Strawberry /Square

Harrisburg, PA  17120

Telephone:  717/787-3289

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PRESCRIPTION PROGRAMS

PACE and PACENET are funded by the Pennsylvania lottery and administered by the Pennsylvania Department of Aging.  These programs offer comprehensive prescription coverage to older Pennsylvanians and cover most medications that require prescriptions, including insulin, syringes and insulin needles.  These programs do not cover over-the-counter medicines, medical equipment or doctor, hospital dental or vision services.  There are no premiums or monthly fees charged to people who enroll in these programs.  

PACE
To be eligible for PACE, you must be 65 years of age or older, a Pennsylvania resident for at least 90 days prior to the date of application, and you cannot be enrolled in the Department of Public Welfare’s Medicaid prescription benefit.  Eligibility is also determined by your previous calendar year’s income.  For a single person, your total income must be $14,000 or less.  For a married couple, your combined total income must be $17,200 or less.  Once you are enrolled in the PACE program, a benefit card will be sent to you, and you will pay a $6 copayment for each prescription medication at your pharmacy.  

PACENET
To be eligible for PACENET, the age, residency and Medicaid requirements are the same as with PACE.  However, the income limits are higher.  Again, the income is based on the previous calendar year’s income.  A single person’s total income can be between $14,000 and $17,000.  A married couples combined total income can be between $17,200 and $20,200.  Once you are enrolled in the PACENET program, a benefit card will be sent to you, and you must meet a $500 deductible.  Once you meet the $500 deductible, you will pay an $8 copayment for generic prescription medications and a $15 copayment for brand name prescription medications.  Prescriptions purchased prior to your enrollment in PACENET cannot be applied toward your deductible.   

New Enrollments 

If you are not currently enrolled in either PACE or PACENET, you can obtain an application in English or Spanish any of the following ways. 

Download and print, or complete the PACE Application on-line by clicking the following link:

CLICK HERE TO COMPLETE A PACE/PACENET
APPLICATION ON-LINE

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© 2004 Alzheimer’s Association Greater Pennsylvania Chapter
All rights reserved.  This page was last updated August 06, 2004.
Helpline: (800) 272-3900

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